Many of you are wondering what has been happening with Lilly over the past several weeks. We are sorry that it has been awhile since we have posted but as you read further you will see we were going through a major struggle with Lilly.

The Neurologist have said that they do not know if Lilly is going to have a quality of life. The MRI scans of her brain look normal (except for the cerebellum) and they said that she could possibly have a quality of life except that they can’t tell what these De Sats are doing to her brain. When she holds her breath they can’t see what that is doing internally to her brain. So the Neurologist unit said “She could possibly have a normal quality of life and she could possibly not we don't know."

The Cardiac Unit is saying they don’t think Lilly is going to have any quality of life. They are saying she will be facing multiple surgeries and they aren’t sure if she will be able to make it through all of them. The Cardiologist Surgeon is willing to do the open heart surgery but is very hesitant. If we decide to go ahead and do the surgery Lilly will have multiple open hearts surgeries within her first year of life. They will need to replace her Mitral Valve with a mechanical valve(this will be done several times as she grows), they are going to replace her Aortic Valve with her Pulmonary Valve, they will need to put a machanical valve in place of her Pulmonary Valve, and lastly they will need to fix her Coarch of the Aorta. Again these are very major procedures that our little Lilly is facing. This is a huge decision that Kim and I are going to have to make whether to continue to put Lilly through these surgeries or as the Cardiac Unit has said we let Lilly rest and return to our Heavenly Father. We are stuck between a rock and a hard place on these decisions. We feel at times Father has said its time for Lilly to come home and other times we feel that he is trying to teach us that if we have faith in him he will continue to show us miracles with our little Lilly.

We were able this past Halloween to have one of our dear friends the Washburn family come over and take some wonderful family pictures. Here are a few of them. We hope you all love them as much as we do. We were able to put Lilly in a dress for the first time and she behaved very well throughout the photo session. We again want to thank you all for following this Blog and all of the love and support that each and everyone of you has given us. We know there are many of you out there that are praying for Lilly and our family, more so than we could ever imagine and thank you! Please pray that Kim and I will be blessed with wisdom on the decisions we are facing. Lilly is in liver failure so time is of the essence. Thank you again!

Jones Family