Countdown Begins

We are heading into the final weeks before Lilly will arrive. Not a lot has changed with her heart, brain, or kidneys over the past month. As of last week she was measuring in at a big 4lbs 12ozs. I got a glimpse of her face on the 3D monitor and she has chubby cheeks which make it look like she is storing food like a Gerbil. They say she has a lot of hair. That explains the heart burn. Lilly continues to fight her way to the end.

Summer and Bryson went to the hospital last week for a sneak peak at the Cardiac ICU where Lilly will be. The play therapist took Summer on a tour of the unit. She showed her around the unit and answered any questions Summer had. The therapist told Summer to come and decorate Lilly’s room just like we would at home. Summer is allowed to draw on the white board and even paint the windows. Summer already has an idea in mind of what she wants to draw. The therapist showed the kids the playroom where they can play when they come to visit their sister. The playroom has every toy imaginable and every gaming machine too. The therapist gave Summer and Bryson each a “Lilly” doll. They got to decorate her and her hospital gown. Bryson scribbled and Summer added a face, hair, and clothes underneath her gown so she doesn’t get cold. The therapist talked to Summer about the heart surgery and explained the procedure. They also talked about how Lilly will be different from other children. The therapist did a beautiful job and we were so impressed with the way she made the children feel welcomed and comfortable in a sometimes scary environment.

We will continue to update as new information arrives before her delivery date. Once she is born and we are able to get a picture we will post and keep you informed as the information from the doctors is discussed with us. Please continue to pray for not only Lilly but for our family. And the countdown officially begins: 19 days till we get to see our Lilly!!!

P.S. Hope you enjoy the music Miss “SP”