Lilly Grace

Lilly Grace
Lilly Grace Jones

Wednesday, September 22, 2010

First Trach Change

Lilly had her first trach change this afternoon. This was a nerve racking process for mommy even though the surgeon came and did the first change. He put a bigger trach in to help Lilly resolve her “air leak” problem. It took the surgeon, nurse, respiratory therapist, doctor, and nurse practitioner to perform the procedure. Even though it was just the nurse and the surgeon doing the work everyone was on standby just in case Lilly pulled one of her tricks again. The trach was changed successfully performed without Lilly having a meltdown. Lilly is still having some issues with keeping her food down. She threw up two times this morning so once again she was taken off formula while the doctor tries to solve the mystery. Lilly is still getting the IV fluids even though she is not allowed formula. Lilly weighed in this morning at 9lbs 8oz which amazes us since she is getting hardly any formula. Lilly looks so peaceful and beautiful today. Lilly has been in a great mood she has not had any meltdowns or holding her breath incidents. Thank for all your prayers and sweet thoughts. We are so grateful for everyday we get with our family.

2 comments:

  1. Good girl Lilly!! If you keep behaving like that you will get to go home faster and be away from all the poking and prodding! Lilly, ask mommy and daddy to put more pictures up so we can see how beautiful you are!
    Katey

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  2. Hoping everything is going great for your family I am a new mother and just recently my Lorelei had her second attempt at a trach surgery it has been successful this time and she recently went through her first trach change which too was successful hoping and praying for the best with your little Lilly and my little Lorelei

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