Lilly Grace

Lilly Grace
Lilly Grace Jones

Thursday, September 2, 2010

Surgery Update

Lilly has been slowly recovering from her Coartation of the Aorta Surgery. She has done pretty well. We are continuing to try and wean Lilly off of the ventilator. The actually removed the tube this morning but unfortunately they had to put it back down her throat after twenty minutes. Lilly is just not ready to try breathing without back-up support right now. Overall her kidneys look good, her blood pressure is a little high but expected, and her chest tube is draining the way it should. It’s unfortunately a wait and see game. They will continue to try to wean Lilly from the ventilator but there may come a time to explore other options such as a tracheotomy. This is a road we would like to avoid. For at this time Lilly is stable but continues to be closely monitored.
We discussed the results of the surgery…. unfortunately the doctor was not able to completely repair Lilly’s coart. Also Lilly’s aorta valve is leaking. Overall this means that Lilly will go back into surgery at some point over the next year. Unfortunately this will be open heart surgery. We are praying that Lilly will be able to grow and maintain over the next few months before we have to face this major surgery.

So we are asking that you continue to pray for Lilly and that she will be able to come off the ventilator and be able to grow, get stronger, and come home before her next surgery.

Thank you to everyone for the prayers, gifts, and simple acts of service.

1 comment:

  1. I wish I could be there for you! But just know that we're watching & praying for you guys. Love you!

    ReplyDelete