We have had a very eventful day. This morning around 8:15 am I received a phone call from the nurse that was taking care of Lilly. She said they had just given her orders that Lilly would be going to surgery today. My heart sank. The doctors decided to repair the arch in Lily's heart. It was too small and would not allow blood to flow through it very well. The doctor had to cut the small portion of the arch out and basically reconstruct the arch with the remaining pieces. Just remember that Lilly's heart is the size of a walnut. WOW!!!! We had not expected the surgery to happen till later in the week. We made it to the hospital just in time to wait. But during this waiting time I was able to hold Lilly. We snuggled again for 2 hours. They came in at 12:30pm and said it was time to go to surgery. We were able to walk with Lilly to the surgery entrance where Grandma, Grandpa, Grammy, Grampy, Mom and Dad all kissed and said a temporary Goodbye. Lilly’s surgery went really fast. They told us the surgery would take 3 to 5 hours. Within two hours of us walking out of the surgery wing they told us she was done and being brought back upstairs. The doctor said everything went well and we were playing another wait and see game. While they were in surgery they placed two more lines. One line is in her right wrist this helps monitor blood pressures and blood gases. The second Line is in her neck artery. I have no clue what this line does. Lilly has a cut about 6 inches long on her left side/back. Hopefully the scar will fade with time. Lilly also has chest tubes in her side to help with drain edge. These will be removed within the next few weeks. Later tonight they will remove the IV line in her leg and the urine cath.
As I am sitting in the hospital room writing this Lilly is beginning to stir. If you watch carefully she is using her ventilator tube as a pacifier. Whenever the nurse touches, moves, or changes Lilly’s diaper she stirs slightly and sets her bells and whistles off telling everyone in the unit don’t mess with her.
Our next goal is to get Lilly off of the ventilator.
Thanks you again for your prayers and sweet thoughts. A very special Thank you to everybody that helped us today with our other children and everything else.
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I'm so glad everything went so well!! and quickly! That's always a good sign! I think it's better they just went ahead and did the surgery, less time on the ventilator. So glad you also got to hold her lots before. It wont be long til she's back in your arms again. I hope today is uneventful and she can rest it all off, drain, and recover. Thinking about you tons and praying for you! It will pass even though the days are dragging on for you right now!
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