We are sorry that is has been a few days since we updated the blog. Josh turned the duty back over to me and well I just run out of time and steam by the end of the day. Lilly’s heart cath was canceled on Monday due to a possible infection in her PIK line. After they took the dressing off of her arm it appears only to be a skin infection but extremely close to the PIK line entrance. They are continuing to run labs to make sure that her body is not infected and she will be ready to handle to the procedure. Lilly continue to struggle to breathe so they started her on a nasal canula with room air being pumped into her system to help her not have to work so hard for air. She also had a feeding tube inserted into her nose and down into the tummy. This pumps breast milk into her tummy.

I got to hold Lilly yesterday for two hours. It brings my soul peace to have my baby in my arms. She slept peacefully during the time we had together. Lilly loves her pacifier and Whooshing bear (makes the sound of the womb). Lilly HATES diapers changes and vital checks. This is the only time she makes a peep. And it is a very loud peep. You can tell she is tired of being poked and jostled.

Thank you so much for the prayers, sweet thoughts, gifts, and everything else that people have done for our family. We feel so blessed to have this much love and support. Please continue to pray. We love you all.

Kim